{"id":11597,"date":"2023-02-28T10:53:02","date_gmt":"2023-02-28T09:53:02","guid":{"rendered":"https:\/\/www.ull.es\/portal\/noticias\/2023\/02\/28\/el-instituto-de-enfermedades-tropicales-de-la-ull-celebra-el-dia-mundial-de-las-enfermedades-raras\/"},"modified":"2026-10-30T09:25:33","modified_gmt":"2026-10-30T08:25:33","slug":"el-instituto-de-enfermedades-tropicales-de-la-ull-celebra-el-dia-mundial-de-las-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/www.ull.es\/portal\/noticias\/fr\/2023\/02\/28\/el-instituto-de-enfermedades-tropicales-de-la-ull-celebra-el-dia-mundial-de-las-enfermedades-raras\/","title":{"rendered":"L&#039;Institut des maladies tropicales de l&#039;Universit\u00e9 de La Laguna c\u00e9l\u00e8bre la Journ\u00e9e mondiale des maladies rares"},"content":{"rendered":"<div>\n<p>Aujourd&#039;hui, 28 f\u00e9vrier, est la Journ\u00e9e des maladies rares. Ces maladies, telles que d\u00e9finies par la Commission europ\u00e9enne, constituent un groupe vaste et vari\u00e9 de troubles caract\u00e9ris\u00e9s par le fait qu&#039;ils touchent un petit nombre de personnes, sont chroniques et invalidants, pr\u00e9sentent un taux de mortalit\u00e9 \u00e9lev\u00e9, des ressources th\u00e9rapeutiques limit\u00e9es et entra\u00eenent de multiples probl\u00e8mes de sant\u00e9, sociaux, psychologiques, \u00e9ducatifs et professionnels.<\/p>\n<p>Cela englobe une grande vari\u00e9t\u00e9 de troubles et de sympt\u00f4mes qui varient non seulement d&#039;une maladie \u00e0 l&#039;autre, mais aussi d&#039;un patient \u00e0 l&#039;autre. Ces affections sont g\u00e9n\u00e9ralement graves et chroniques, n\u00e9cessitant des soins sp\u00e9cialis\u00e9s et prolong\u00e9s. Dans certains cas, il s&#039;agit de complications rares de maladies courantes.<\/p>\n<\/div>\n<div>\n<p>Cette journ\u00e9e est c\u00e9l\u00e9br\u00e9e car il n&#039;est pas si \u00ab inhabituel \u00bb d&#039;\u00eatre atteint d&#039;une maladie rare. Pr\u00e8s de sept mille maladies de ce type ont \u00e9t\u00e9 recens\u00e9es.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-68026 size-medium\" src=\"https:\/\/www.ull.es\/portal\/noticias\/wp-content\/uploads\/sites\/2\/2026\/10\/ADA33F8D-89EC-4588-984C-A18771F066CD-300x300.jpeg\" alt=\"\" width=\"300\" height=\"300\" \/>L\u2019Institut universitaire des maladies tropicales et de sant\u00e9 publique des \u00eeles Canaries, rattach\u00e9 \u00e0 l\u2019Universit\u00e9 de La Laguna, contribue \u00e0 la lutte contre certaines de ces maladies rares, telles que la k\u00e9ratite \u00e0 Acanthamoeba et l\u2019enc\u00e9phalite amibienne. Ces maladies ne b\u00e9n\u00e9ficient toujours pas de diagnostics ni de traitements sp\u00e9cifiques. L\u2019Universit\u00e9 de La Laguna est au service des \u00eeles Canaries et de la communaut\u00e9 internationale, et s\u2019efforce d\u2019am\u00e9liorer la qualit\u00e9 de vie de ces patients.<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>Hoy, 28 de febrero se celebra el D\u00eda Mundial de las enfermedades raras.\u00a0Estas afecciones o enfermedades poco comunes, seg\u00fan definici\u00f3n&#8230;<\/p>","protected":false},"author":10,"featured_media":11600,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[653,76],"tags":[],"class_list":["post-11597","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-instituto-universitario-de-enfermedades-tropicales-y-salud-publica-de-canarias","category-institutos-universitarios"],"acf":[],"primary_category":null,"featured_image_thumbnail_url":"https:\/\/www.ull.es\/portal\/noticias\/wp-content\/uploads\/sites\/2\/2026\/10\/6C1E9733-2834-4D91-AF15-44B9F79DB861-300x169.jpeg","_links":{"self":[{"href":"https:\/\/www.ull.es\/portal\/noticias\/fr\/wp-json\/wp\/v2\/posts\/11597","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ull.es\/portal\/noticias\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.ull.es\/portal\/noticias\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.ull.es\/portal\/noticias\/fr\/wp-json\/wp\/v2\/users\/10"}],"replies":[{"embeddable":true,"href":"https:\/\/www.ull.es\/portal\/noticias\/fr\/wp-json\/wp\/v2\/comments?post=11597"}],"version-history":[{"count":1,"href":"https:\/\/www.ull.es\/portal\/noticias\/fr\/wp-json\/wp\/v2\/posts\/11597\/revisions"}],"predecessor-version":[{"id":11599,"href":"https:\/\/www.ull.es\/portal\/noticias\/fr\/wp-json\/wp\/v2\/posts\/11597\/revisions\/11599"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.ull.es\/portal\/noticias\/fr\/wp-json\/wp\/v2\/media\/11600"}],"wp:attachment":[{"href":"https:\/\/www.ull.es\/portal\/noticias\/fr\/wp-json\/wp\/v2\/media?parent=11597"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.ull.es\/portal\/noticias\/fr\/wp-json\/wp\/v2\/categories?post=11597"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.ull.es\/portal\/noticias\/fr\/wp-json\/wp\/v2\/tags?post=11597"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}